CareGiver360

“CareGiver360® is the ideal place to keep all of Maddie’s information. Instead of making several phone calls in the morning to give updates, I can just post the information on the website for everyone to easily review.”
- Laura, Maddie’s Mom

An Infant’s Chronic Condition

Watching your child suffer from a chronic illness is never easy, but trying to understand how your infant feels when she can’t communicate is both difficult and worrisome. Since Madison was born, her mother, Laura, always knew there was something the doctors weren’t catching. “It’s just a simple cold” the doctor would say. But watching their baby struggle night after night for Maddie’s first few months left her parents both exhausted and very concerned about her health. After all, their other daughter had always slept through the night, so what was going on with Maddie?

When winter set in, Maddie couldn’t sleep well, keeping herself awake by constantly thrashing her little body around in an attempt to get comfortable. After one long night of uncontrollable coughing, Laura took Maddie to the pediatrician. They learned she contracted RSV/Bronchiolitis, was hypoxic and was immediately hospitalized for almost two weeks on oxygen. Over the next several months, Maddie was admitted five times for her respiratory issues and was diagnosed with reactive airway disease. Her pediatric pulmonologist said Maddie would need to be supported on daily medication to keep her little lungs open, especially during the cold winter months.

With Maddie’s parents both working full-time, keeping all her daily medications and needs in order for Maddie’s caregivers was very challenging. Depending on how Maddie was doing in the morning, it would set the stage for her dosages of medication, oxygen needs and treatment throughout the day. What she needed one day could completely change for the next. Descriptions of what to watch in Maddie’s respiratory behaviors, types of coughing to be concerned with and any signs of breathing distress needed to be updated daily and fully available for her different daycare teachers and grandparents.

Sharing Treatment

“CareGiver360® is the ideal place to keep all of Maddie’s information,” said Laura. “Instead of making several phone calls in the morning to give updates, I can just post the information on the website for everyone to easily review.” Maddie’s Personal Care Guide allows Laura to update her daughter’s daily medication needs and provides a place where her caregivers could read information about Maddie’s condition and learn what to watch for in case anything changes in her breathing throughout the day.

“The first winter was very difficult. But now that we know what our daughter needs and we have a convenient way to communicate those needs, it really puts us and her teachers at ease!”