User Stories
Adult with Developmental Disabilities
“The CareGiver360® service is very easy to use and is a wonder tool for transferring all the information I have about AJ’s care needs and quality of life to the new caregivers who are now helping us.”
- AJ’s Parents
A Family Member Unable to Advocate for Himself
AJ is a young man who certainly enjoys being around friends and like many young men his age, is looking forward to the excitement that life has to offer. He has, however, a few challenges that most typical young men do not face. AJ was born with cerebral palsy and developmental delays. He is non-verbal and uses a wheelchair for his mobility. He is not able to provide any self-care including feeding, hygiene and other daily caregiving activities.
AJ has spent the last 16 years of his life receiving high-quality support from his school system and local service agencies. Now that AJ is out of high school and looking forward to his adult years, he is confronted with the new reality of needing independent caregivers to provide the daily support that the schools once offered. It is a challenge that requires creativity and flexibility to meet AJs’ unique needs.
The most important challenge of providing caregiving support to AJ is figuring out how to introduce AJ to a new caregiver and provide information that is easy to communicate and understand. His parents have been intimately involved with every step of his care for his entire life. While this has resulted in very good care, it also means that when his parents are absent, the caregiving quality can drop off quite a bit. It is a situation that needs a new approach.
Creating a Care Guide
When AJ’s parents became aware of CareGiver360® they quickly realized this was a service that would provide a way for them to not only create a care guide that contain organized care information about AJ, but would also make it very easy to share that information with others. Due to AJ’s involved care needs, the CareGiver360® personal care guide is now the first place his parents go to record his care needs. For AJ’s parents “The CareGiver360® service is very easy to use and is a wonder tool for transferring all the information we have about AJ’s care needs and quality of life to the new caregivers who are now helping us.”